Last Big Pow Wow With The Team

We met with Matthew's doctors yesterday to go over all the procedures from 1st diagnosis to now and beyond. Matt is doing good with a few little blips. He is for now considered acute GVHD not chronic witch is good and we hope that stays that way. As Matt comes off the prednisone that might change a bit. Matt dose have GVHD in his stomach but no were else that's concerning so far. He doses have to wear a back brace especially molded for him because of the compression fractures at T7 & T8 vertebra's. Matt will undergo a bone density test today to state the obvious. He is very brittle from large doses of steroids. Matt gets a IV drug (cant remember the name) once a month to help boost his bones back to were they need to be. So Boy's even though you don't like it DRINK YOUR MILK! We have a plan of witch drugs to taper first, and hopefully by June 6th when Matt is off prednisone then we can talk about trying to get him to take his Magnesium pills orally so we can get his Hickman line out. Tacro helps prevent and treat GVHD, but it robs your body of much needed magnesium. Matt has to be on Tacro for a few months so the only other option is taking the pills. He hates them, there big and he will need to take 15-20 a day. Crazy hu! When his Hickman line comes out then we can stop the Lovenox shots, he gets those 2x's a day. Matt is so brave and we are so proud of how he is handling all this. He is truly a VERY special son to have, and I'm glad he's ours! He is still on 21 med's, 1 IV fluid, 1 Shot daily.
We are packing up the apartment so after our 9:00 appointment tomorrow we get to move back home!!! YEA, Matt and Mom are so excited we just can't stand it. We already have appointments with his Doctor Irwin at Mary Bridge next week. Also with a orthopedic surgeon at Children's Hospital. We plan on having a quiet weekend as a FAMILY again. I can't remember the last time we all were together. We have alot of catching up to do.
We hope you all have a wonderful and safe Memorial Day Weekend. The Yantzers