Well we can start out by saying we are out of the hospital again. ( knock on wood ). Matt had an infection in his Hickman Line again. The Doctors gave Mom a pat on the back because we caught it really early so his Line didn't have to come out again. Matt was put on an antibiotic that has to be given every 6 hours for 11 days. The Doctors said that most parents keep their kid's in the hospital for the coarse of the antibiotic because it's so hard to do. I told them that we are not the average parents and wanted to be out of the hospital. It takes a little time to flush his line, hook him up, watch to make sure no air bubbles in the line, then wait 1 hour for it to finish, and flush his line again. Try doing that every 6 hours 24 hours a day. By Friday Mom wore her self out and Dad came to the rescue! Good job Steve!!!
Today is day 88 and we met with the team today and they told us that All the tests came back very good. The bone marrow showed no signs of Leukemia or Philadelphia Chromosome. The bone marrow biopsy came back and showed No GVHD!!! Yey, Matt way to fight. Matt's bone marrow hasn't figured out how to produce it's own antibodies yet so they gave him a transfusion to help jump start the system. That test is very expensive and they wouldn't mix it up till we were there in the building. We hope it works.
The team is keeping us busy with 12 appointments this week, the most important one is on Friday at 2:00 witch they will go over all that they did and what is to come with Matt. This is the discharge appointment ( we are so excited ). We cant wait to get home and be a family again. The team has contacted Mary Bridge and our Dr. Irwin there and told them that we will be coming home soon. We will have weekly appointments for a while, as Matt still has his Hickman Line in and probably be sent home on IV fluids.
We are excited to see when he gets Medications taken away, but it seems every time they stop one they start another. Matt is still on approximately 17 different medications, some he will be on for about a year or so. Matt is doing great in spirits and is motivated to come home. Keep up the prayers they are helping a great deal, especially in keeping Mom and Dad's inner strength going. Thank You All, The Yantzers
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5 comments:
HEYYY!! Such good news!! Fighting, praying, wishing you all the best!! You are all so strong, what all families should be made of.... All the best, always, Karen
Matt,
So happy that everything is going well. Keep up the inner strength and courage that has sustained you through these past several months. We can't wait to see you and give you a big hug! Love ya, Aunt Laurie, Uncle Sparky, Shelby & Eric
There's no place like home!
Keep fighting the war!
Liz
Yea, Matt! Getting home is going to be so nice for all of you. Now you will have Nicole to pick on again. And for awhile she will probably even like it.
Can't wait!
Aunt Leanne
Matt,
It is so good to hear such positive news! Keep up the good fight and stay positive. Good job mom and dad (and I'm sure your sister is doing her part). Hope to see all of you soon.
Scott & Curtis
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