Knock On Wood Dosen't Work!!!!

Well what do I say and were do I start. Everything was going pretty good other then some back pain Matt has been having, then Tuesday night Matt started running another fever 39c. They sent us over to Children's Hospital again and admitted us. They didn't know were the infection was or if it was a infection at all or GVHD. True Matt doesn't have GVHD in his bone marrow but that doesn't mean that it can't pop up anywhere else in his body at any time. The Team was all over finding out the question We keep asking, WHY! Yesterday was day 90 and they did a CT scan to see if they could find any infection anywhere in his body. They also did a ECO Cardiogram to check for the same thing in his Heart. They did lots of Blood tests also to check for infection.
Today is day 91 Thursday the 15th and we were able to talk to the Doctors in great length, they had lots to say so here goes... They feel the Gleevac Chemo is interfering with his blood cell productivity so he needs 2 blood transfusions today, about 10 day's ago he needed 2 unites also. They also feel since none of the blood tests have come back positive yet, that Matt may have some GVHD brewing in his stomach. They also told us that the prednisone that we have had him on for so long and are desperately trying to get him off of has made his bone density week. So week that the CT Scan shows that T7 & T8 vertebrae of his spine have compression fractures.
Matt is scheduled tomorrow morning for another EGD to confirm if his temp's are due to GVHD. We are also going to consult a Ortho specialist about his bone density and the compression fractures in his back. We new Matt wasn't feeling very well and that his strength was going to take a while to come back, but we never thought for a minute it was this bad. Matt is scheduled for a ultra sound today to see if the blood clots he had in his right arm are maybe have an infection in them. All in all Matt is trying to stay positive, it helps that he is on pain medication 24-7 to help with the pain.
Matt and Mom did have some fun last night. They had a couple of hair dressers come in to give all the Mom's on the floor a hair cut for a belated Mother's day present. I took advantage of that, but Matt ,I love him dearly talked Mom into cutting off all my hair. So I agreed to do it! WOW I cant believe I have no hair. We will post pictures in a couple of day's. All the nurses were feeling my head and telling me that my head felt like a chinchilla. Pretty funny. So yes my daughter Nicole gets her wish, I have brown hair now just like my daughter instead of blond.
I hope you all are jealous because I can go down the freeway at 60 miles an hour now with my windows rolled down all the way and my hair doesn't get messed up!! Like yours. Trying to keep some humor in this Mess. It's wearing both Steve and I down but somehow we are able to pick each other up and keep going. Love to all, Miss you all! Matt and Lynn