Hi to everyone, and we hope you all had a pleasant Easter. Well were to start, Matt was put on hold for the Hickman Line because of problems getting his IV Meds changed over to pill form. Now we are back on the schedule tomorrow morning at 9:00 am to have his Hickman line put back in. Matt is still on a couple of IV Meds that will be changed over tomorrow we hope.
GVHD has shown up in a rash form on Matts skin now. The team is all over that and treating him with steroids to help fight against it. Matt will be put back on TPN today as he is not eating or drinking enough and is rapidly loosing weight. A little extra layer is OK when you are going through this, but Matt has pretty much lost as much as we would like. That's one heck of a diet! As of today he has lost 22lbs.
We are still hoping to get out of the hospital either Thursday or Sunday this week. Oh by the way TPN is IV form of feeding patients who cant eat. Matt will be on IV TPN and IV fluids when they discharge us, along with lots of other Meds pill form. I'm well onto my way in having my nurses degree as Steve is too. Now we have another profession to fall back on (he-he).
Today is day 39 post transplant, and we are going stir crazy!! We asked to have a stationary bicycle put in his room to keep us busy. We now know how hamsters feel when running on the wheel in their cage. We have been in ISO which means isolation since the 3rd of March. That means we cant leave the room without a escort making sure we don't touch anything. It's because of the infection in Matts Hickman Line, he's not contagious or anything. They are just ultra careful on this floor because of all the immune suppressed patents. We have bee here at Children's Hospital since February 4th, 2008 and as nice of a place this is we really feel that we have overstayed our time here and can't wait to leave. Keeping up the faith and still staying positive as possible. We can and will beat this!! Lots of Love the Yantzers
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