Monday, July 28, 2008
Sunday, July 27, 2008
Ted Nugent Is In Town For His Concert At EQ Casino
Matt has the GREATEST DAD in the whole wide world! We still don't know how he pulled this one off but he did. Saturday night we all went to Hotel Murano in Tacoma to have a private meeting with Ted Nugent before his concert. We were waiting in the loby and Matt was getting really nervous. Then there he was walking out of the elevator, Matt's heart dropped. Ted was such a gentleman, sitting and talking to Matt and family. He told us of a couple of hunting trips he was just on, one were he dropped a 700 pound bear with a bow. Matt gave him a picture of his last hunting trip 4 days before being diagnosed with ALL Leukemia. Ted Signed both Matt and Nicole's electric guitars, then we got lots of pictures with him. It was great that Ted took the time to see us, we know how busy he is. Matt is doing better each day, but we still worry about when that darn kidney stone will pass. We have a plan to follow so Matt shouldn't have to go back to the hospital, Mom is becoming a nurse. Matt will turn 14 on the 1st of August, we plan on a exciting week this week. We will post more soon. Lynn & Family
Friday, July 25, 2008
Reappearing Kidney Stone?
Well, here we go again. Matt woke up at 12:30 on Monday night in alot of pain. We had to call the Fire Department to get him to Emergency at Mary Bridge. Matt had a ultra sound done with no results, then finally a CT scan to show that the Kidney stone that we thought came out didn't. It was still sitting there at the top of his Kidney. (DARN) We were admitted by 5:30 a.m. and spent the next 2 days trying to flush it out of his system. After realising that everything they were doing there Mom can do at home we talked the doctor into releasing us. We are home now and it's just a waiting game on when the stone want's to come out. As you can tell Matt got a new pair of sunglasses that he loves and Mom has been doing yard work at the house to keep her on a even keel. More to come, Matt is doing alot better, we are rounding the bend to recovery. Lynn and Matt. :)
Test Results On GVHD
Matt had his scope and they sent all the biopsy's to Seattle. All the test's came back that Matt has GVHD of the skin and stomach very mild. Yea! This mean's that they will continue on the medicines for a while longer. A little bit of GVHD is good as it helps kill off any Leukemia cells that might try to come back. This is called relapse, and all we can do is hope and pray that doesn't happen. Nicole was such a good match that Matt's chances of a relapse are very low.
Monday, July 7, 2008
Kidney Stone update
We think Matt passed his 3rd kidney stone on Fathers Day. We are not too sure though as he still has pain in his side and the test was inconclusive from the hospital. Any way we spent another 5 days there. Things Quieted down at home and we were just celebrating our first week (FULL WEEK) home since being released from SCCA in Seattle when things went bad again. Matt Has Cdif again and is back on more antibiotics. The last few days he has shown more signs of GVHD so we are going in for EGD number 3 today July 7th. They will check out his stomach and beyond, also take biopsy samples to send to Seattle. They have decided to send a sample of his skin too, since he is pretty rashy. We still find humor in our day, to keep from going crazy. check out these pictures. More to come soon it's been a rough week here. Love to all Lynn & Matt
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