Matt's Back At School

We have been so busy this summer down at our cabin that we have lost track of Matt's blog. I guess that's a good thing though. Matt is back to school and doing well. He has all A's and 1- B. He has a great team at Bonney Lake High to help him readjust. They have him in mostly 9Th grade classes but a few 10Th grade classes so he can be with his class. Matt now is enrolled in drivers ed, and drives with mom every evening. Boy if you could see the smile on his face it glows.

Pictures of Matt Being Matt and Loving it!

Matthew has 1 more year till he can full fill his life long dream of being a Fireman. Of course he has to start as a volunteer first.

Really Busy Trying To Keep Up With Matt

Matt's doing great! He is 115 pounds now and gaining muscle. We saw a growth hormone specialist to see if we could give him shots to boost his growth, but the doctor said that it could possibly trigger a relapse in ALL Leukemia. We immediately opted Not to take that chance. We will just hope for the best. Matt hasn't grown at all for 2 years. Matt is really excited to get back to school and be with his friends again.

Matt's on track now

Matt is going to enjoy his summer with no limitations on food. The sad thing is the rest of the family is gaining too. Matt weighs 105.2 today. He is enrolled in his high school for next year. He will be repeating the 9Th grade. He will also be on a IEP program as he under went alot of testing and they came to the conclusion that he has Cognitive Disorder including challenges with Processing speed and Information Processing, Sustained attention/ attention to detail, Executive Function/ Efficiency, Academic skills reduced from pre-illness levels, Anxiety Disorder, and Adjustment Disorder with Depression. With all that said he is ready to go back and we are confident that the Sumner School Dist. will not let him fall through the cracks Academically.

Weight Problem With Matt

Matt had his endoscopy and everything looked good. We sent samples to SCCA to confirm. The top dogs their confirmed that Matt dose have GVHD ever so slightly in his stomach. They are putting him on beclamethazone again to clear it up. Not treating it would make things worse. They feel that being on this steroid will help clear it up so it doesn't spread any further. We changed Matts antidepressant and also put him on a appetite stimulant drug to help put the weight back on to a more normal level. last week he weighed 100.2 lbs. this week he weighed in at a whopping 101 lbs. YEA MATT!! keep eating.

New York City, Live On Set, WOW!

Why Can't Matt Gain Weight?

Howdy everyone, Matt still is hoovering between 98 & 100 lbs. We are unsure why he cant gain any weight. Today April 29Th we went to Mary bridge to see Dr. Irwin.He had some ideas that might be causing it. One is that we gave him so much meds & ect. that his stomach quit working with his brain, or It could be GVHD, or it's depression. Mom spoke with the nutrition team and also one of Matt's phycologist, I'm thinking it's depression more than anything else, at least I'm hoping so.
Matt also talked with his phycologist and his Dr. and by the time we left he was feeling better and smiling again. He even gave all the nurses a hug before we left.
Dr. Irwin says we don't have weeks or months to figure this out or Matt will have to have a feeding tube put in. OK take a deep breath,everything is going to be fine.